Posted by Steph in
Head Wound, Home during Treatment, Quotes / Inspiration, Surgery, on Tuesday, November 7. 2006 at
Another dressing change done today....Asher kicked, wailed, screamed, cried, flailed, everything you can imagine, all the way home for the 40 minute drive....demirol wasn't the problem Friday or today as he didn't get any today....I think it just comes down to the fact that he gets woke up from a sleep so fast and he hates it (even at home he hates that). I'm going to ask for a bigger dose of clonodine on Wednesday because the dose today was small so he wouldn't be too sleepy, but I think he needs to sleep a bit more....I'm not sure there are any clear solutions to all of this, but the good news is that Asher doesn't have any anxiety when going TO the appointments. Today Asher woke up around 7am yelling for me from his bed and when I got there he said, "Look, the sun came up." So I got him up and said time to get ready to go for our appointment. He grabbed his green dragon and two packs of water balloons and said he was ready to go (cept I had to get him dressed yet, so did that and then off we went)....then when we are there (which is 1 1/2-2 hours before the procedure even takes place), we have a routine, play games, watch cartoons, and then get Versed, and then get put to sleep. The wound specialist took a photo today so I'll post it here (check out all that hair on his head, although there isn't any on the back where they pull the tape off).
Other than the daily stuff, Asher is playing outside a bunch, playing inside some, riding his tricycle, drinking some but not eating, etc. He threw up his NG tube yesterday and had to get a new one before bed and it went okay (he's still not happy about getting it put in, but who can blame him). He sleeps through the night in his bed with NO problems, going to bed around 7pm-8pm and getting up around 7am-8am. He has his pole with his VAC hanging and tube attached to his head and he has the formula for NG tube feedings going at night too.
All of us are SICK SICK SICK....Alexa has a HORRIBLE cough and is extremely tired all the time....Asher is coughing a little but mostly a snotty nose that needs to be blown (and is hard with a NG tube in there)....Aubree sounds sick in her "voice" but is doing the best out of the three....I am about like Aubree, sound hoarse, sick but I'm blowing my nose a lot yet (don't have that real nasty cough that Alexa has)....Scott is the healthiest of the bunch, as always, but even he is tired and coughing just a bit....so....hopefully we can only get better from here on out.
I'll end with some quotes:
"You gain strength, courage, and confidence by every experience in which you really stop to look fear in the face. You must do the thing which you think you cannot do."
"I wanted a perfect ending. Now I've learned, the hard way, that some poems don't rhyme, and some stories don't have a clear beginning, middle, and end. Life is about not knowing, having to change, taking the moment and making the best of it, without knowing what's going to happen next. Delicious Ambiguity."
"You may have to fight a battle more than once to win it."
"There is only one happiness in life, to love and be loved."
there is so much in your writing..courage, and like Asher, see,the sun came up...that is a gift in itself, and your notes are restoring some of that wonder I have lost in the past year of being "well". Also, hooray for you being so good at putting that tube back, I never could do that..
being home is wonderful...
OMG he is sooo sooo cuuute Steph! Sooo sorry you ALL are sick! That is just so icky with a bundle of babies at home! Enjoy some movies and having fun!
Looooove those quotes! Those are MAJORLY inspirational!!!!!!!!!! TFS!!!!! Oh and the movie CARS came out today! They might love that!
Asher's wound looks a lot better, it looks like the bone is mostly covered now.
We'll pray the wounld closure and graft goes well, it looks like your boy is healing, despite the virus that has struck your family.
Hope you all are feeling better soon.
Asher's and your courage are inspirational, Steph. What a positive little guy you have, and a true testament to how you and Scott are raising him.
Prayers that all 5 of you feel much better, soon.
Well - that's just no fun that he still didn't wake up well! But hurray that he was ready to go! Great photo of him and love the quotes, Steph! So sorry you're all sick...
Asher looks so good. The wound looks healthy. What a great job you are doing as a nurse. Prayers are being answered and we add all of the family illness to those prayers. Wish I could be there to give you a big hug and help where needed. God is good.
Steph & Scott:
I hope just reading this will pass some strength to you from us and all who I share your daily updates with. We all support you and what you to know we are always thinking of you and Asher. Get yourself healthy as you need all your energy for Asher and the girls. Life is a crazy trip but for every valley there is also a mountain top. Asher looks great, your home care is the best. A big pat on the back. Hugs to all!
((((hugs)))) I'm still praying over here! Asher looks so happy in the photo! Sorry about all of the sickness- what a pain to have to deal with that too.
Great quotes- love the Gilda Radner one TFS!
How are you feeling today? Mommy said that everyone has a little cold and that you have a yucky nose. Are you having fun playing with all your toys? It must be lots of fun to be able to go outside and play in your little park, huh! Have you been playing fun games with Alexa? What do you like to play?
I just wanted you to know that I am thinking about you today. I can see that your hair is starting to come back! YEAY! Is it a little tickly?
I love you,
P.S. Steph- Sorry to hear everyone is feeling so crappy!! We went through the same thing in this house a couple weeks ago, NO FUN! It is hard to take carer of the munchkins when you feel like crap! Have you discovered the wonders of Zicam yet? It actually works!! Hugs and kisses to everyone! ~c.