Posted by Steph in
Head Wound, Hospital Stay, Surgery, on Friday, October 27. 2006 at
Today Asher had his third VAC therapy dressing change on his head. They gave him a dose of versed upstairs, two more doses downstairs and then the anesthesiologist told me later it took three times the "normal" amount of propofol to get him fully asleep. My boy is one tough boy! He was groggy and out of it and they told me he was still putting his hands up to his head while they started to work on it.
Then the anesthesiologist gave him versed, zofran, clomodine (spelling?), and demirol. While he was out they did his PICC Line Dressing change too, more woohoo! He woke up slow slow slow, got brought up stairs and he slept on the way up, then woke up when I moved him to his bed and he ate a sugar cookie that my friend Barbara brought to him today and drank milk, and is now sleeping again while clutching a thing of cupcakes. Everyone that comes in just smiles big. (NOTE: Right now he only eats right after he wakes from anesthetic if he wakes in a good mood.)
So, the anesthesiologist said I could only stay till Asher was out and then I had to leave....BUMMER! BUT, a nurse came out to get me from the waiting room part way through and said the plastic surgeon and the neurosurgeon both wanted me to come see it. Yeah! I was glad I got to see it in person. It doesn't look as bad in person as it does on my camera (the nurse had taken a photo). They said it looks better than they thought it would. It is smaller. It isn't bleeding. The bone looks okay right now, but still exposed. They said he won't need antibiotics at home. They said they are feeling good about the VAC Therapy that is being used.
So, all good news. Oh, and for the dressing changes next week, they will NOT be done in the clinic. They will be done in the PACU just like today. The only thing is, they will be done outpatient so we have to check-in at admitting 1 1/2 hours before the procedure and have to stay till he is awake....for instance, next Friday we have to be at the hospital at 6:30am.
Now to pack up this room and take my boy home tomorrow morning or early afternoon!!!!!!! I'm just going to enjoy this time and not worry about his tumor, his cancer, his chemo, his future therapy, nothing, just enjoy having my kids under one roof again! Asher hasn't been home since the 2 days and 3 nights in September (9/5-9/7)!
Oh, and Asher's counts today:
anc 799 (dropping more and not sure why)
weight - 16.1 to 16.6 varying depending if he had shorts or shoes on
Posted by Steph in
Head Wound, Hospital Stay, on Friday, October 27. 2006 at
Asher was really happy when he woke today, although did complain his tummy hurt again. A bit later he pooped...he still seems to mix up his tummy pains and his bowel pains and it is the same every morning (and sometimes evening now too). This formula that is going through his NG tube, 18 hours a day, is making him poop several times a day, and more like diahrea. They had switched to the "fiber" one but I don't think it has made much of a difference. Anyway, he kept telling me, "Go take your shower, Mom," when I kept coming back because someone else was in the bathroom at that time. Then when I finally was showering, I guess he talked to people that came in by him. But a couple of hours later he didn't seem to feel too well and said he wanted to go to sleep so I gave him my down pillow and he fell right to sleep and slept a bit even after Scott and the girls arrived for a visit.
Asher has been having lots of mood swings the last two days so I talked to the "pain lady" and we have decided to go back to a dose of 2.5 with the methodone. We had dropped to 2.0 two days ago, I think. He doesn't complain about pain, he's just very irritable, so I think that is the pain talking. I agree with her, it was good we figured this out today so we could decide on a good dose for him to have at home. She also said this is a low does; she is surprised he hasn't needed more pain medicine. Oh, and she told me she got a good anesthesiologist for tomorrow that will give Asher something to wake him up slowly....crossing my fingers it goes well tomorrow.
We aren't exactly sure why, but the walker for home was delivered to the hospital today and the VAC and all the dressing change supplies were delivered here, too, tonight. I'm thinking tomorrow they plan to hook Asher up to the rental VAC for home (quite small compared to the hospital one) so I can get familiar with it and make sure it works. So maybe that is why it was delivered here. Since all dressing changes will be done Monday, Wednesday and Friday, at the clinic, I'm hoping I can bring the supplies there, but I need to check tomorrow. That's what they decided on for the dressing changes, to use a drug (that starts with a "C") in clinic, starting next week, instead of doing it like they did yesterday. The nurse practioner told me today she thinks that will be less traumatic for him. The nurse practioner said she has her discharge orders ready and all she needs to do is push a button on the computer after hearing what the plastic surgeon says tomorrow afternoon. If we are able to bring Asher home, we will be doing that around noon or 1pm on Saturday and the home nurse would come before the 5pm antibiotic needs to be hooked up.
Asher is asking for food lately. Tonight he asked for a cheeseburger, chicken nuggets, french fries, and cheptchup (ketchup). I'm sure he wanted McDonald's, but since I don't have a car here while I stay here, I had to order it from the cafeteria. He took a bite of a french fry dipped in ketchup, chewed it and said, "ICK" and spit it out. That was that. He does like to drink mountain dew though (maybe 2oz per day), which is interesting because he never liked it before chemo! He also sips whole milk (maybe 1oz total per day).
Today Asher walked holding on to ONE of my fingers with his left hand and pushing a toy vacuum with his right hand. He did GREAT! His balance is really good and he's so strong. He does still need his walker, though. The physical therapist said she feels very little resistence in his ankles/feet now. He runs at a pretty good speed with his walker. He is an amazing, AMAZING little boy. I am SO PROUD of my little boy's willpower and drive. He's really an inspiration!