Posted by Steph in
Chemo Round 3, Head Wound, Scans, Surgery, on Saturday, October 7. 2006 at
Thank you, everyone, for your thoughts and prayers for Asher!
He looks "good" today. He needed oxygen overnight but is fine without it right now. He is talking and wanting to sit up and wanting to drink (although he isn't supposed to drink since he will have surgery later today) and even asked to go walk! We took him out of his room but he could only take 6 steps before his feet hurt too much to walk. He hasn't had any fever and his blood pressure and heartrate is okay. He sleeps and then sits up and then sleeps and then sits up. Good cycle of rest and low activity.
When Scott got here at 9am Asher said, "Mommy has to stay too!" I told him I was staying, but over the next half hour he said it two more times and then he realized I was actually staying. This is the first time in quite awhile now that Scott and I have been here together and you can see it makes Asher happy today. He was even talking about baby Aubree and that she sleeps by the tent (well, her cradle was in a bedroom with a play tent that Asher and Alexa play in, and he remembered that and wanted to talk about it).
My emotions are a little more in check this morning. I'm tired from basically no sleep last night, but at least my eyes aren't red from crying anymore.
I was thinking about how I have been honest with Asher about things and telling him what he can understand for a 3-year-old and it really works. He is honest with me when he wants something, doesn't want something, when he hurts, etc. I told him yesterday that he would have to lay on his tummy now so his head could heal and he said, "Okay." When I told him last night he had to have surgery to make his head better he said, "Okay." When I told him yesterday that we were going down so he could get pictures of his head he said, "Okay" (and even told Scott this morning about the pictures). As long as I was there he was really okay with everything. He is brave and seems to trust me (us). It really makes it easier for me, as a mom, to have my child OKAY with everything. When I look at him I think, I don't think it would be this easy if it were me. I think if I had a huge hole in the back of my head I would not be okay. He's such a good boy. I sure do love him!
So, the plastic surgeon called this morning and told the nurse to tell me that we'd have surgery this afternoon some time. That's all I know right now. I also haven't heard what the CT scan showed. Will update later, probably tonight.
Hemoglobin 7.6 (he will get blood today)
Posted by Steph in
Chemo Round 3, Head Wound, Infection, Surgery, on Saturday, October 7. 2006 at
That was said after the plastic surgeon told me, "That is a very bad wound...."
The surgery was about 1 hour 15 minutes long.
I don't know a whole lot more right now....or I can't think or type right now.
They went down an inch, to the bone, exposing the bone, along that entire area, cut it out, till it bled a bit and he didn't bleed a lot, which they were worried about because his platelets were so low.
Asher may have surgery again tomorrow....the bone may have to come out....the last protection to his brain....
They will do a lumbar puncture to check for infection in the spinal fluid (brain)....
It was also said that it is at least a "full season off of chemo" in order to heal....
Asher will be coming back up to the oncology floor as long as his blood pressure and oxygen is okay tonight. I am waiting for him to come up here right now. I'm holding one of his bears. I'm crying. A nurse came in and put her hand on my shoulder to show she cared. I know I won't sleep; I'll be by his side all night....
Posted by Steph in
Chemo Round 3, Head Wound, Infection, Scans, Surgery, on Saturday, October 7. 2006 at
Wish this didn't have to happen....wish I could take all this pain away from my little boy....his counts are up, at least, and he is getting platelets within the hour....around 10pm-11pm he goes into surgery for a debridement. (Thanks for the link Kathleen.) His head got so bad in a day (I refuse to post the photo, it is that bad) that most of the tissue is now dead and has to be scraped out, cut to good tissue and then constant dressing changes....poor guy will have to lay on his belly. Then starts the really really slow healing process....
He's going to CT scan....gotta go....more later
please pray for Asher....pray that the bone from the craniotomies didn't get infected so it doesn't have to be cut out too....pray
7:15pm - OK, CT scan is over, he did SOOOO well!! He's so brave. I sang twinkle twinkle little star during it and he liked that.
So the neurosurgeon (the one that has done Asher's craniotomies and shunt surgeries) and a plastic surgeon will be doing the surgery later tonight.